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Date

2020-06-03

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  • DPV → DUO
    • it is a simple as presenting the specified categories for Medical research (from GA4GH) so that they can be mapped with the DPV, and then presented back to that W3C list for comment. 

    • But, this does bring up a lot of questions we should conside, and we should definitely confirm what the objective is before we start. 

    • Are we  looking to be able to specify the same explicit consent research with DUO, but with the DPV? 

      • DUO purposes do not translate into purposes - 
        • DUO - combines purpose and processing 
          • We would have to include both to be able to make a consent receipt for DUO 
      • Restriction - are added as labels 
      • DUO- Schema -
        • can put restriction of sharing - data can only be shared - when doing collaboration with a specific research - 
        • how to restrict  - 

      • Can we use the privacy agreement to specify the consent for genomic research ?  -

      • would be usable in the GA4GH ecosystem ? 

    • Starting point
      • lets test map a unified approach 
      • to legal documents 
    • Should it be a DLC reference implementation, with a  review of the Privacy Agreement for Common Accord, and perhaps a round of feedback from key stakeholders?   

Decisions

Action items

  • Tabled: Until -  - Former user (Deleted) Mark Lizar (Unlicensed) research and arrange mtg follow up
    •  
    Summer Project -  DUO _ To DPV
      Mark Lizar (Unlicensed) and Former user (Deleted)
    • Anadi has been tasked with mapping Unified to  DUO
    • This is also a part of the summer project
    • Discussed breaking some  DUO  labels down for DPV as a starting point - 
    • DUO is centralised federated data access framework with data access administered by federated identity Silo 
      • in contrast DPV is a personal data control vocabulary framework  - for which the labels can then be apart of decentralised data access framework . 
    • (great to see this project naturally progressing)