Description

Alice gives consent, assents or approval to the sharing of her (health data? genomic data?) approves the collection, use and disclosure information about her for the purpose of clinical research. See these resources for some ideas:

• Alice Authorizes Clinical Research from HEART (talks about an aggregator subsequently sharing with clinical researchers)
• Alice Selectively Shares Health-Related Data with Physicians and Others from HEART (talks about deidentified data)
• The GA4GH folks have a committee that created a model data sharing consent form in CommonAccord. There's capacity for it to be signed. (This is perhaps where we want to concentrate our efforts.)

Champion / Stakeholder

Jim? John?

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