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This page records the Discussion Group's meeting notes for July 2016. See the DG calendar for our meeting schedule. We meet Tuesdays for 30 minutes at 7:30 PT / 10:30 ET / 3:30 UK / 4:30 CET and Thursdays for 30 minutes at 2pm PT / 5pm ET / 10pm UK / 11pm CET (US times are normative during daylight saving time changes). We use http://join.me/findthomas for both voice and screen sharing.

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Tuesday July 12

Attending: Thomas, Eve, Jim, Scott S, Don, Marc, Philippe, Thorsten, Ann, John W

The May 23-24 event at MIT, variously called Digital Contracts, Identities, and Blockchain and Digital Identities, Contracts, and Blockchain (smile), had some notes as output. Here are relevant links:

For a candidate use case, Jim proposes: Patient consent, in a context of 3-4 countries – e.g., including France, Germany. Leverage the GA4GH (Global Alliance for Genomics and Health) and genetic research. Jim has been discussing this use case with Bart Suiches of Philips Blockchain Lab. Would this be about storing consents? The GA4GH folks have a committee that created a model data sharing consent form in CommonAccord. There's capacity for it to be signed.

Would the Consent Receipts work be able to handle a machine-readable representation? It might need to be extended. This would be a good use case for extensibility for that spec.

Culture might be the biggest barrier around consent – IRBs and equivalents would have trouble conceiving of consent as anything but a one-way door. John notes that there are six different ways to get approval to process data, and only one of them is consent. John recommends narrowing down this as a use case a bit, since it involves research and IRBs and such and takes it out of the full health regulatory environment (at least in the Canadian system). This is really a "health research" use case more than a "healthcare" use case, as it stands.

AI: John to share research consent templates with Jim/the group.

On Thursday, Scott will present a sample use case template into which we can fill use case content. Everybody should take the opportunity to get familiar with the linked material above, and start to think about their own use cases they'd like to collect.

Tuesday July 5

Eve is taking notes and is happy to take notes in future.

...

  • Jim Hazard - Lawyer frustrated with word processing
  • Eve Maler - ForgeRock - interesting UMA/smart contract connections
  • Thomas Hardjono - interest in getting a high-level language specified for contracts
  • Andrew Hughes - runs the Leadership Council
  • Jeff Stallman - blockchain developer
  • Scott Shorter - Kimble & Associates - doing some ONC work, auditing, and governance
  • Don Quigley - services leader for directory services for GE
  • Marc L. Aronson - president and CEO of Pennsylvania Association of Notaries
  • Kathleen Connor - consultant involved in UMA, UMA legal, and ONC
  • Ann Vroom - private individual interested in blockchain
  • Clare Nelson - AllClearID
  • Thorsten Niebuhr
  • John Wunderlich
  • Javier Moreno
  • Colin Wallis

...