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Status of This Document: This is an Editors' Draft Report produced by the User-Managed Access (UMA) Work Group. See the Kantara Initiative Operating Procedures for more information.
Copyright Notice: Copyright © 2021 Kantara Initiative and the persons identified as the document authors. All rights reserved. This document is subject to theKantara IPR Policy - Option Patent & Copyright: Reciprocal Royalty Free with Opt-Out to Reasonable And Non discriminatory (RAND) (HTML version).
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Throughout Julie's journey there are many places events where health information is accessed by Julie or other specialists. Those events are where Health IT is used, would - or could - be used , by Julie and her mother to have more agency and participation in her carejourney. In addition, there are several policies that must be understood and enforced by both people and technical systems as Julie receive care and transitions between different health providers. The following sections will expand on the complexity of health policy, introduce UMA and FHIR and finally show one way a UMA ecosystem can improve Julie's interaction throughout her journey.
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