Do we want to submit this for any conferences:
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6. (state-diagram) Julie turns 13 - control moves from Sue to Julie (Eve if she can, otherwise Nancy will)
"At the age of 14, Julie is able to take a greater role in managing her health, including control of her data. At her annual appointment, this new responsibility is discussed between Julie and Dr. Erica. Julie is educated on how to manage access to her clinical record."
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This section present's one possible health IT system, however in reality there is huge variations in technical services available and provided to patients. (addressing the policy and leveraging the features of FHIR and UMA) Is delegation in this section? Yes, this would be the delegation section where we show control moving from Julie's mother to Julie. But she is still only 13, so she is educated and the state changes, but no information is shared here. |
Transitions:
- We start with Julie as a child, age 10, who’s mother controls access to her health records
- Then at age 13, Julie is an adolescent and has the right to control access to her health data
- Then at age 18, Julie has full control over her data (Eve, I don't think we need this transition anymore. In our story, Julie gets full rights when she is 13 - just to keep it simple.)
- Notes: The ages used here reflect the policies in effect in the state where the use case takes place. But the correct age restrictions can be substituted to match the policies of each state.
7. UMA/HEART support for sensitive data (Nancy will try to get something in here)
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7. UMA/HEART support for sensitive data (Nancy will try to get something in here)
"At 16, Julie begins to experience sex and also begins using alcohol socially. Julie doe not feel comfortable discussing this with her mother, but Julie does share this information with her pediatrician in confidence during her annual visit. Her pediatrician discusses these details with her during the annual visit and makes notes in her record. Her pediatrician provides relevant educational information and discusses safe behavior, as part of her overall evaluation for multiple potential risks of adolescents in transition. During their discussion, Julie and her pediatrician agree she should be using an oral contraceptive and it is prescribed. Julie is also tested for STI, which comes back positive. Julie is prescribed Zithromax for the infection."
"Several months later, Julie experiences troublesome acne. Her pediatrician sends her to a dermatologist. However, Julie wishes to keep her sensitive information from her previous encounters private."
8. Conclusion
There is more to consider in step with the technology capability of UMA, groups needs to consider all the BOLTS when designing solutions and not 'leave it to the reader' to sort out themselves
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