2024-08-20 Meeting notes

Noreen Whysel

Y

Bev Corwin

N

Sal D'Agostino

Y

Thomas Sullivan

Y

Catherine Schulten

N

Jim StClair

No longer a member of the group

James Kragh

Y

Jeff Brennan

N

Justin Byrd

Y

Thomas Jones

Y

Jorge Flores

Y

Mark Verstege

N

Simone Alcorn

N

Maria Vachino

N

Renee Hunter

N

Isha Chhatwal

N

Kennedy Alexis

N

Use Cases

@Noreen Whysel @Tom Jones

At the closing of our last WG meeting Noreen shared an encounter her folks had in trying to check on a medication for her Dad. With her permission, I wanted to see if our WG could come up with a solution or a work around this encounter.  Are there other types of encounters we can document? 

"My parents were visiting with us last week and, as I believe you all know now, we all got COVID. We ran into trouble with ordering medication for my dad who is 79, early Alzheimer’s, but still in control of his own healthcare. My mom wanted to check on the Rx order at Walgreens to see if the meds were filled and reduce the number of times she needed to run to the store. But she was not able to get my dad’s consent to access his order because he needed his own account. But he doesn’t have a working email anymore. Then she wanted to check MyChart to see if his new diabetes medicine was ordered, but she couldn’t access his record. Same reason. So she’s back to waiting on hold forever because she had to call all the providers directly."  

Noreen further commended: At some point, and given GenZ’s preference for social media over email, I wonder how soon email will no longer be a requirement, or the only requirement.  
and then Tom shared the following:

This is the general use case that was considered for the underserved.
If you don't have the technology, you cannot be discriminated against.  <<  our primary principle; so let's find a solution!.

Let's look at the specific problem.
The notification channel - If that is not available, then account recovery is often blocked. It may be that this case is even illegal under ADA, although IANAL.

Issues:

• technology access (email, phone, etc.)

• delegation of authority

• shared EHR

• QR code linking to system login, can’t be direct access to records

• Provider (doctor, pharmacist, hospital) system not set up to help

• Phone trees that are designed to deter people from talking to a person vs going to the website.

• EHR programs like MyChart that don’t allow you to assign access to an individual from another system.

• SureScripts problem with access to doctor’s prescribing information.

• EPIC MyChart “Share Everywhere” restrictions make it difficult to share (only available for 60 minutes, must know DOB). Security seems weak (DOB and ReCapcha.

Tom shared the following in response to Noreen's email:

https://docs.google.com/document/d/1_dmZedjyJz0vCRaCupm2MD-yIzPDP3dk/edit

Summary: “It is time to ensure that all people can access the benefits of technology and not just the technologically literate members of society. And it is past time to ensure that this access to digital technology does not expose those humans to risks that they cannot comprehend or defend against.”

New Item: Rosenfeld Media Advancing Service Design Conference

@Noreen Whysel

Noreen submitted an application to the new RM conference on service design to discuss our work:

Rosenfeld Advancing Service Design Proposal.docx.docx

News:
CA MDL

@Justin Byrd

California scheduling a MDL hackathon. Deadline passed.

Meanwhile big announcement that CA MDL will be in Apple and Google wallet.