2023-06-20 Meeting notes

Name 

Present 

Noreen Whysel 

Y 

Bev Corwin 

N 

Sal D'Agostino 

N 

Thomas Sullivan 

Y 

Catherine Schulten 

N 

Jim StClair 

N 

James Kragh 

Y 

Thomas Jones

Y

Name 

Present 

Simone Alcorn 

N 

Michael McGrath  

N 

CARIN Alliance: Building Consumer Trust in Healthcare

Jim Kragh

1. The CARIN Alliance is very focused on building consumer trust in the healthcare sector and want to promote an individual’s right to access their medical provider and request a copy of their protected health information under HIPAA which can be directed to a third party of their choice. For underserved populations that might be a unique opportunity for Kantara to explore a trust framework model and vision, under its Trustworthy banner, along with the REUP, IA and user receipt WGs coupled with pairing with non-profit hospitals or for-profit entities.

Healthcare going through a major change with new data requirements for serving vulnerable populations.  

CARIN Alliance Guideline in review, meeting Monday 

• Level of identity and token assurance 

• Jim challenges them to look at 800-63-4 and Kantara trudge banner to set up a process for orgs that serve vulnerable populations. 

• Dr Tom asks if they can “borrow” http://ID.me framework. They likely have underserved as customers. Black Hall is the contact there. Maybe Kay can talk to them? 

• Jim recommends waiting until final comes out in September. 

Focus on healthcare: 

• Needs ties to local caring community and local government. Gov can enforce fraud/abuse rules. 

• Hospitals powerful, but those that accept Medicare (most) are under government scrutiny. 

• NIST considers itself “industry agnostic” but this focus means they may not consider Medicare as a solution, though it could be viable. 

• CMS slide deck slide 25 discusses individuals, portability of data, smart cards (to discuss next time in August) 

HT-1 Proposed Rule

Jim Kragh

2. Jim forwarded information and asked the group to review for next meeting in August.

Health Data, Technology, and Interoperability: Certification Program Updates, Algorithm Transparency, and Information Sharing (HTI-1) Final Rule | HealthIT.gov  

Measurement Spec Sheets on the Proposed Rule 

ONC is now accepting public comments  by June 20, 2023.    What data will be collected:   Individual Access Spec Sheet [PDF – 139 KB] 

Recorded Thursday, June 1, 2023 at 1pm ET       Video Recording    

Impacts for Patients and Caregivers Information Session Information Slides PDF [ 3.4 MB]